Advocating for Yourself in Medical Settings
Navigating cancer care means interacting with multiple healthcare providers, attending frequent appointments, and making complex decisions about treatment. In these settings, self-advocacy (speaking up for your needs, asking questions, and ensuring you receive the care you deserve) becomes essential. You are the expert on your own body and experience, and your voice matters in every medical conversation.
Self-advocacy starts with preparation. Before appointments, write down your questions and concerns. Prioritize what matters most, as time with providers can be limited. Bring a notebook or use your phone to take notes during the visit, or ask if you can record the conversation for later review. Many people find it helpful to bring a family member or friend who can listen, ask follow-up questions, and help remember important details.
Don't hesitate to ask questions, even if they seem basic. If your doctor uses medical terminology you don't understand, ask for clarification. Questions like "Can you explain that in simpler terms?" or "What does that mean for my treatment?" are completely appropriate. According to the National Cancer Institute (https://www.cancer.gov), understanding your diagnosis and treatment options helps you make informed decisions and feel more in control of your care.
It's also important to speak up when something doesn't feel right. If you're experiencing new or worsening symptoms, side effects that are affecting your quality of life, or concerns about your treatment plan, tell your care team. They can't address what they don't know about. Open communication between patients and providers leads to better outcomes and improved quality of life.
If you feel your concerns aren't being heard or taken seriously, you have options. You can ask to speak with another member of your care team, such as a nurse navigator or patient advocate. You can request a second opinion (most oncologists support this and it's a standard part of cancer care). You can bring someone with you to appointments who can help reinforce your concerns. You can also contact the patient relations department at your treatment center.
Remember that advocating for yourself also means advocating for your comfort and dignity. You can ask for accommodations like a blanket during infusions, request appointment times that work better for your schedule, or ask staff to explain procedures before they happen. Most cancer treatment centers encourage patients to voice their preferences and needs.
Self-advocacy isn't about being difficult or demanding. It's about being an active participant in your care. Your healthcare team wants to help you, but they need to know what you're experiencing and what you need. By speaking up, asking questions, and insisting on clear communication, you ensure you're getting the best possible care throughout your cancer journey.
Written By: Carolyn Vandenbroek, MSDM
Reviewed By: Srilata Gundala, MD
Disclaimer: This blog provides general educational information and is not a substitute for medical or psychological advice. Always speak with your healthcare provider and mental health professionals for guidance specific to your situation.
